Up and eating again!

Sorry it's been a little while since I've posted an update. My day is spent driving (4 hours), visiting Jaxson (4 hours), working (7 hours), pumping (4 hours), taking a bath and getting ready for work (1 hour), sleeping (4 hours). That being said, I don't often find time to update his blog or respond to emails and phone calls. I try to set aside some time each week for those things.

Anyway, Jaxson is growing like a weed! He is up to 4 lbs 12 oz! Pretty good for someone whose diet consists of lipids and proteins through an IV. They are starting his feedings back today, and we are praying everything goes well with digestion! On Tuesday of this week, we were told he might not be eating for another few weeks (until he was ready to be bottlefed), but apparently they changed their minds. He won't be bottlefed just yet. Instead, he will have the OG tube that he had before. It is a tube that feeds directly into his tummy. I think they are planning to start him out at 3 cc an hour.

He came off the CPAP on Sunday and has been doing great on the cannula.

He hasn't needed any blood lately, so that is another plus. His platelets are in the 30's, but they haven't mentioned transfusing again.

Please pray for the 3 of us. Eric and I are getting so tired. And it doesn't help that we feel like nothing is being communicated clearly to us. We have tried to equip ourselves with as much medical terminology as possible, but apparently knowledge is offensive to some of the nurses. This is our son, and we want to give him the best care possible. Please pray that God will show us what he wants us to do. We have thought about moving Jaxson to a hospital a little closer to home, and it seems like God is pushing us to do that. We love you guys so much and appreciate everything you do for us!

We hope that we can someday be helpful to each one of you!